Rough day today for our baby girl. Her little lungs are having a hard time dealing with the constrictions from her heart anomalies, and they had to increase her oxygen to 60%. Ups and downs are normal, but it doesn’t make it any easier to watch. And, as her doctors keep reminding us, time is of the essence. Every day she goes without surgery increases her risks.
In better news, MUSC has confirmed they will accept Celise, so now they can get started on transferring her home. And on a personal level, I’m looking forward to familiar surroundings as we navigate this nightmare.
I’ll never be able to say it enough, but thank you, thank you, THANK YOU for all of your well wishes, prayers, and shares! We’re halfway around the world but we can still feel all the love for our baby girl.

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